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Wednesday, March 9, 2011

Living with a baby who has SEVERE allergies

Yesterday I posted some pictures of my daughter Ava when she had a pretty severe allergic reaction to walnuts.  Today I thought I would tell her story and explain what its like to live with a baby who has severe allergies.
The day Ava was born was one of the happiest days of my life, little did I know that she had life threatening allergies.  When Ava was 6 weeks old, I noticed small changes that quickly added up to something big.  Her skin was rough like sand paper, her head had what i thought was a bad case of cradle cap that didn't clear up, actually it got worse, her body and head started oozing a clear liquid. (This liquid happens when you scrape your knee or elbow.)  She didn't like being held, and she was not sleeping through the night.  She would scream and cry for hours. I kept taking her to our pediatrician and she kept reassuring me that it was just a little eczema and dry skin.  I had no idea that it was much, much worse than a little dry skin.
Ava was six weeks old and I was nursing her. I had eaten a peanut butter sandwich earlier in the day (Peanut Butter is one of my favorites) when I noticed a wheezing sound coming from my daughter.  I held her up to pat her back, thinking she had swallowed too much, when I noticed her mouth was turning blue. She was wheezing and the blue was getting darker.  I immediately called 911 and got her to the emergency room.   The doctor had told me that my daughter was in anaphylactic shock and that she had severe allergies.  They gave her epinephrin and oxygen, and had me follow up with an allergy specialist.
She got tested for allergies and that was when we found out that she was allergic to Peanuts, almonds, all tree nuts, milk, eggs, soy, strawberries, peas, cats, dogs...etc  He gave me 2 epi pens to carry with us. Because I was nursing I had to adjust my diet and not eat any of those things.  He also put her on a daily dose of allergy medicine. (like Zyrtec)
That was just my first allergy appointment, and every time that we take her back to get re tested, there are more things she is allergic to.  The list keeps getting longer.  Now she has asthma, and we have to do breathing treatments.  (This is very normal for people who have allergies, they usually will develop asthma)
Yesterday, I bought a small bag of walnuts to make banana bread.  This bread was supposed to be a thank you gift for a friend.  We all were taking our afternoon nap.  When I woke up,  Ava had taken our kitchen chair and pushed it to the counter.  She climbed on top of the counter and got into the pantry and got the bag of nuts down. (She is only 2)  I woke up to find her swollen, and covered in hives.  I felt sick, and panicked.  I called the doctor.  Thankfully this time we were able to treat it with benadryl and not another emergency room visit.
Living with a child who has allergies can be scary.  If you suspect your child has allergies, take them in to get tested.  This is so serious, and it is PREVENTABLE.  This is not a laughing matter.  IT may save their life.

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